Back to Blog

Meet Nicolas

March 22, 2017

Nicolas shares his best days ever with Canuck Place.

In 2013, at only eight months old, Nicolas was diagnosed with Spinal Muscular Atrophy Type 1, a terminal genetic disease that affects nerves and muscle development. This disease affects his ability to walk, crawl, eat, speak and breathe – he is completely dependent on his parents Petra and Rolf.

Despite his physical challenges, Nicolas’ joyful spirit permeates the air around him. “My son’s spirit fills a room, said dad, Rolf. “Whether it’s his fiery ginger hair, his charm, or his wit. Maybe it’s the way he smiles at you and gives you a wink with his sparkling blue eyes.

“Recently he’s adopted a phrase that he greets each day with… Today is the best day ever! He’ll say these words at the most random of moments, each time leaving us with a smile on our face and it immediately shifts our outlook.”

Because of donors like you, Canuck Place is here for Nicolas’ whole family to provide space and support for them to savour their time together. In addition to the medical care, the Canuck Place recreational therapy program provides unique adventures that help Nicolas and his sister, Isabel experience new best days ever.

Today, Nicolas and his family look forward to their time at Canuck Place – a caring, safe environment where they can focus on creating special memories.

“We’re so grateful for the caring community we found,” said mom, Petra. “Outside Canuck Place it’s difficult to participate in activities with other families that do not have children with mobility issues – I often feel like we just don’t fit in. Many activities are not designed to accommodate Nicolas’ abilities. This is where Canuck Place has such a huge impact on Nicolas and our family.

“Canuck place provides us with a safe environment to ensure Nicolas can fully participate in adventures we never thought would be possible.”

You can support Canuck Place kids like Nicolas. Donate Today.

Share This