RESEARCH PROJECT: THE LIVING LAB AT HOME
Lead investigators/designated PI’s
Tim Oberlander and Dr. Hal Siden, Co-Investigator
November 18, 2021
Est. end date December 2021
The “Living Lab at Home” will offer an approach to real time home-based data collection that will expand access to research participation for a wide range of children and youth. In early 2021, we applied for initial CREB approval (H21-00078) for Phase 1. This included engagement activities with parents/youth across the developmental spectrum (qualitative interviews) and investigators and collaborators (focus groups) to solicit perspectives of barriers and opportunities to home based data sampling approaches (Living Lab at Home Kit). This has been completed and now we are ready to undertake Phase 2: pilot demonstration projects, which will incorporate findings from Phase 1 to shape study design and ensure research procedures will be acceptable, ethical, feasible, usable, and in line with patient and family priorities and values for health research.
Few in-home data collection tools have been tested in populations of youth with complex medical and/or developmental needs. We examine the use of three different modalities of data collection (Ecological Momentary Assessment, Physical Activity Monitoring and Saliva Collection) to understand everyday behaviors.
We expect that these pilot projects will provide important information regarding the feasibility and acceptability of these methods, as well as any adaptations required to make these methods more accessible for families across the developmental spectrum.