Family Advisory Council Newsletter: Winter 2025
FAC Chair Message
Hello Canuck Place families!
Wishing you a warm and cozy fall! Over the summer we were actively recruiting new members and received so many wonderful applications! Thank you so much for those of you who expressed interest. In our October meeting, we welcomed new FAC members Christy Fell and Hafeez Shaikh.
Welcome Christy and Hafeez, we are excited to have your voices as a part of the group.
A reminder that the FAC newsletter is now published four times per year and is available online at canuckplace.org–so families can find the information digitally wherever they are.
Sincerely,
Meagan Colenutt, FAC Chair
Message from Board, Family, and Leadership
On behalf of the Board of Directors of Canuck Place and as a Canuck Place mom, I am sending a warm hello from Vancouver Island.
I had the opportunity this summer to spend some time on the ocean and in my garden which was peaceful and restorative.
I wanted to introduce to you a new Canuck Place board member, Elaine Sanders. Elaine works in the mining industry and is a mentor for women in mining and working with remote Indigenous communities to further her knowledge. Elaine is a mom of two girls.
Thank you Elaine for your volunteer commitment to the Board of Canuck Place.
As Chair of the Quality and Safety Board committee, I look forward to providing updates on our planning and governance in the future. If you ever have feedback for the Canuck Place board—which is important in helping the organization improve care—you can find a link to fill out a form below.
Warmly,
Barbra Mohan, Jasper’s mom and Canuck Place Board of Director
A warm hello to Canuck Place Families, from my colleague Kathryn Wozny and I. Together, Kathryn and I are committed to working with our dedicated team members and you—the children and families we serve—to continue to learn and grow together while striving to offer excellent care, programs, and services.
We are so pleased and excited to welcome Dr. Marie-Claude Grégoire in the role of interim Medical Director for Canuck Place, effective September 1.
As you may know, Dr. Hal Siden is leaving his role as Medical Director at Canuck Place and will continue his position as Scientific Director with the Canuck Place Research Initiative. Dr. Hal has been in his role since 2001, a long time for this type of position.
We are continuing the process of securing a permanent Medical Director and Marie-Claude will lead the Canuck Place physician team until the announcement of the new Medical Director.
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Canuck Place opened its doors in November 1995 to the first child and their family. Now, more than 946 children and families are on the Canuck Place program. I thought it would be meaningful to share with you a story from the mom of one of the first children admitted to Canuck Place.
“We first heard about Canuck Place from Brenda Eng (oncology nurse and founder of Canuck Place.) I was so inspired by the care our little girl Rachel received. I will never forget Canuck Place and the love and beautiful death that they helped usher in. I remember when Rachel died it was early dawn, and the robins were wildly singing for my little angel out the window. It was an amazing and a heartbreaking moment–and Canuck Place brought care, beauty, and peaceful love. Because of the care at Canuck Place I found my purpose. I went to nursing school at the age of 30 and now work as a palliative care nurse. I will always be grateful to Canuck Place.”
Read morePlease use the list below to learn more about the programs and services offered to you at Canuck Place.
Connections
Family Connection Drop-In: New times!
These drop-in sessions will provide a safe space where families can come together to support each other, share stories, and find comfort in knowing they are not alone.
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Creative Reflections
Reflect through prompted journaling, drawing, or collage-making in a therapeutic space with other Canuck Place families.
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Engaging online classes for all age groups!
Join Teacher Kay as she expands our learning and experiences in fun, creative ways!
Read moreMusic Therapy
Music Mondays
A weekly music therapy virtual group session where families can come together to share in the power of music.
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Holiday Harmonies: Winter Holiday Party
Get ready to celebrate the holiday season with Canuck Place!
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Tiny Tunes, Tender Times
We are excited to introduce a special 6-week Music Therapy Group designed for babies and young children, and their parents and caregivers.
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Valentine's Day Sing and Smile
Valentine’s Day is the perfect time to celebrate the people we care about.
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Virtual Spring Recital
Let your imagination soar, share your story through music, and be part of something truly special.
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Spring Break Music Therapy Creative Workshop
Get ready to build, play and create together this coming Spring Break!
Read moreBereavement
National Children’s Grief Awareness Day: November 20
Children's Grief Awareness Day is designed to help us all become more aware of the needs of grieving children and of the benefits they obtain through the support of others.
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Parent support groups
Connect with other bereaved parents and carers who understand your experience.
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Walking the Path of Grief
What do you recommend if I am in early months or want information to better understand my grief?
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Text message grief support for families
Feel unsure about how to support youth and young adults who are grieving the loss of their sibling? Are you wondering if a text can really help?
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Butterfly Run wrap-up
Canuck Place joined the 7th annual Butterfly Run Vancouver on October 4 at Olympic Village Plaza. The memorial walk/run helps raise awareness about infertility, pregnancy loss, and infant loss.
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Hearing from you
This work is precious to us, and we want to be sure we’re doing our best work possible: supporting your family in the ways that are most meaningful to you.
We’d like to invite you to share with us about the things that matter to you and your family–through conversation or through expressive art (we’ll send you what you need!). We hope these conversations and activities will be an opportunity for reflection and connection.
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Life is Short Newsletter
You may have seen the Life is Short Newsletter—a collection of short quotes, ideas, and reflections on life’s biggest questions from Dr. Natasha Datoo, Canuck Place Physician and pediatric oncologist/hematologist focusing on what grief can teach us about living well.
Upcoming issues will be themed around topics such as: sharing grief knowledge,, translating grief, language of loss, how to find gratitude, preparing for the holidays, the way animals can comfort, what legacy can provide, and more.
We always welcome families with lived experience to write toward any of these themes to share our gathered wisdom with the wider Canuck Place community. If you are interested in contributing, please email: [email protected]
Family storytelling
Canuck Place works with family partners in various ways to improve our care and also build awareness through family storytelling.
Family storytelling highlights to donors in various ways, the important and impactful interdisciplinary care Canuck Place provides children and families across the province. Our work with families includes sharing their stories through photos, videos, and written interview content across all Canuck Place’s communication and marketing channels.
If you’re interested in sharing your family story, please email [email protected]
Library of Lived Experience
The Library Of Lived Experience is a digital collection of stories and resources from people with lived experience of autism, ADHD, cerebral palsy, and more.
Anyone is free to access and use the Library! The Library is a hub for sharing the stories of people with lived experience. These stories are useful for those with neurodevelopmental conditions, as well as researchers, policymakers, and healthcare professionals.
The Library is intended to amplify the voices of patients, families, caregivers, and communities—ensuring that lived realities can inform research, education, and practices in healthcare and community. It works as both a resource and a statement: people are more than their health records.
The Library’s currently looking for folks with disabilities to join upcoming consultations. These are flexible opportunities open
to people across BC, with participants earning $30 per hour.
Canuck Place helps families carry an infinite light of love
Diana Lee loved to make things—bracelets threaded with careful hands, tie-dyed shirts in vibrant colours, and cheesecakes for the people she loved. She was funny, creative, and endlessly generous.
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Miles of love: Mireille Larosa’s Tour de Canuck Place
On September 1, Canuck Place Mom, Mireille Larosa, set off on a ride dubbed 'Tour de Canuck Place' cycling across British Columbia, in honour of her son Charles, who passed away in 2017.
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Pediatric Advance Care Planning Provincial Project update
This winter, Canuck Place, along with provincial partners, will complete the provincial project to develop an approach to Pediatric Advance Care Planning for BC.
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End-of-Life Simulation
Last year we participated in a collaborative project with BC Children’s Hospital to address gaps in BC Children’s Hospital healthcare professionals’ knowledge, skills and confidence in providing care to a child imminently dying and their family. The quality improvement project aimed to enhance communication, improve collaboration between healthcare providers and increase familiarity with end-of-life care.
An e-learning course was developed along with a three-hour in-person simulation training session. 76 healthcare providers participated in the quality improvement project and over 200 healthcare providers have completed the online learning at BC Children’s Hospital. Canuck Place has also integrated the learning into our onboarding of new staff.
Canuck Place would like to recognize the hard work of Christine Fraser, Camara van Breemen, Natasha Datoo, and Islay Duff in their collaborative work in this quality improvement project and Susan Poitras for her leadership at BC Children’s Hospital to improve pediatric palliative care for the province of BC.
Welcoming our Pediatric Palliative Medicine and Royal College Fellows!
Canuck Place has been supporting pediatric palliative care medicine residency and fellowship training for well over a decade. Our team is committed to training for the future and sharing our knowledge and expertise.
Many years ago we started the process to have our fellowship program accredited by the Royal College of Physicians and Surgeons of Canada.
In spring 2025, the Pediatric Palliative Medicine Fellowship program at Canuck Place was officially accredited by the Royal College of Physicians and Surgeons of Canada. We are thrilled to be recognized by the Royal College for our leadership and ongoing commitment to training for the future.
We would also like to welcome our second official Royal College Fellow, Dr. Maya Rosenkrantz!
Canuck Place Team Day, 90’s style
The Canuck Place team gathered for our annual Team Day event on September 4, and this year was a fresh 90’s theme (think circa 1995) event, in honor of Canuck Place’s 30-year anniversary.
Team members came dressed in style, creatively borrowing from their children’s closets and showing their best thrift shop finds, imagine plaid shirts, ripped jeans, Doc Marten shoes, mini backpacks, vintage concert t-shirts, just to name a few. The day focused on community, connection, and celebration with teams from our three locations: Abbotsford (Dave Lede House), Vancouver (Glen Brae), and Granville office.
The day included getting to know more about our leaders with a hilarious trivia talk show with the senior leadership team, a morning workshop focused on emotional intelligence, led by Russell Cullingworth (former Canuck Place Director, Finance and Facilities), Staff Years of Service Awards recognizing 5,10,15,20,25, and 30 year celebrations (we had 19 honorees!) with speeches thoughtfully written by lead managers, and afternoon activities including friendship bracelets, hip hop dance, cedar weaving, sound bath, meditation and reiki and outdoor games and a staff created photo booth.
The day was totally rad, filled with laughter and memories, and the team are definitely looking forward to the next one!
Employee of the month: Gaia!
Our Employee of the Month doesn’t need a desk, a laptop, or even opposable thumbs—just a wagging tail, a heart full of love, and an impressive work ethic when it comes to cuddles.
Gaia, our beloved PADS accredited facility dog, has officially fetched the title of Employee of the Month! Whether she’s offering calm companionship to a child, sitting in on difficult conversations to bring a sense of peace, or gently nudging a team member who needs a break, Gaia’s presence is pure comfort.
With her steady paws and soothing presence, she reminds us daily that healing doesn’t always come in words—and sometimes, the best therapy has four legs and fur. Three cheers (and a few treats) for Gaia!
Celebrating 30 years of compassionate care!
This month, we are celebrating 30 years of Canuck Place. It’s been an honour to walk alongside the children and families in our care.