Lead Investigator

Dr. Hal Siden

Co-Investigators and Collaborators

Elisa Castro Noriega

About the Project

Infants, children, youth and young adults (ICYA) with serious illnesses follow unpredictable trajectories living with complex healthcare needs. Pediatric Palliative Care (PPC) encompasses more than the final days of life, attempting to improve quality of life, sometimes over many years. In this study we describe demographic characteristics, calculate yearly prevalence and model risk of instability for the population in BC who would benefit from PPC services, to inform program planning and establish baselines for future studies.

Main research goals

  1. To provide an estimate of the number of ICYA living with serious illnesses in BC, who had been diagnosed at hospital.
  2. To describe demographic characteristics of this population and their clinical stages.
  3. To determine the yearly prevalence of ICYA with serious illnesses in BC and their risk of instability.